General Path

If most of what was referenced on the Basic Path is familiar to you, you may be ready to consider other issues, many of which are posed  and answered in frequently asked questions (FAQ).

The website CLLFAQ has a very comprehensive list of questions and answers, acronyms, and glossary for chronic lymphocytic leukemia. Continue with a linked index of CLL FAQ…

Here are some other questions the answers to which you might want to consider:

1. Are there any guidelines for the diagnosis and treatment of CLL?

Yes.

Guidelines for the diagnosis and treatment of chronic lymphocytic leukemia: a report from the International Workshop on Chronic Lymphocytic Leukemia updating the National Cancer Institute–Working Group 1996 guidelines.

[Download PDF]

Cheya Venkat, founder and president of CLL Topics, LLC strongly recommends everyone concerned with CLL read and refer to the guidelines developed by the world’s leading CLL experts. Read more…

Also review Chronic Lymphocytic Leukemia Treatment (PDQ®).

2. What should I know, generally, about tests and biomarkers?

What Type of CLL Do You Have?  

3. What promising developments are occurring in CLL diagnosis and treatment?

An Expert’s Perspective: Why New CLL Treatments Supersede FCR [Jan 2013]

B-Cell Therapies

Emerging Therapeutic Options

Inhibition of B-Cell Receptor Signaling as a Therapeutic Strategy for Treatment of CLL [May 2013]

How Do Ibrutinib (PCI-232765) and Idelalisib (CAL101) Work? [Aug 2012]  Sharman Icon

Dr. Jennifer Brown on FCR and Ibrutinib [May 2013]

Road to Approval in CLL Raises Questions, Stirs Controversy [May 2013]

Obinutuzumab (GA101) Gets FDA Breakthrough Therapy Status [May 2013]

Dr. Sharman’s CLL & Lymphoma Blog [May 2013]

Seeds & Soil” [Aug 2011]  

T-Cell Therapy

Genetically Modified T-Cells for CLL [September 2012] Sharman Icon

T-cell Therapy: Research Breakthrough !(?) [August 2011] 

Engineering T-Cells Sharman Icon

 

 Vaccines

Could This Be The End of Cancer? [December 2011]

4. How does one cope with cancer?

Many resources are available to advise and asssit patients and caregivers in coping with cancer. Here are a few places to begin:

Coping with Cancer: Supportive and Palliative Care

Coping with a Diagnosis of CLL

An On-line Workshop on Coping with Cancer (audio 0:55:15)

Stress Management for Caregivers (audio 1:00.21)

5. What does life and end-of-life look like for CLL patients?

Dying Sharman Icon

Palliative care: Easing the course of serious illness

CLL Diary: The Mayo Clinic’s CLL Quality of Life study…,

Nearing the End of Life

Children and End of Life

End-of-life Issues

Even if your treatment is going well, it’s a good idea to plan ahead. Talk to your family and your doctor about health care and other legal issues that arise near the end of life. Put your health care choices in writing (with an advance directive or living will). This is important, if a time comes when you can’t make and communicate these decisions. Think about your treatment options and which kind of treatment will be best for you. You may also want to choose a health care agent to make and carry out decisions about your care if you become unable to speak for yourself.

A time may come when your goals may change from treating an illness to maintaining your comfort and dignity. Your doctor can address questions or concerns about maintaining your comfort when cure is no longer an option. Hospice care professionals can provide palliative care in the comfortable surroundings of your own home.” — source: CLL Topics at Chronic lymphocytic leukemia (CLL) Website

6. What can or should family, friends, and other caregivers know and do?

Family/Friend Support: What Can I Do?

Caring for Family and Friends with CLL

Preventing Caregiver Burnout

Feedback

More questions and links to related resources will be added as the website is developed and suggestions are received. Please submit your comments, questions, and suggestions, here.

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