Basic Path

Since you may not be sure what to ask or where to look, we’ll start with a few basic questions and recommended resources for answers. [Let’s wet our thirst with a a few sips from the bubbler.]

Note:
Choose which ever questions seem important to you at this time. You can come back and explore other questions and answers, later.

1. What is leukemia?
Leukemia is a type of cancer that affects the blood and bone marrow, the spongy center of bones where our blood cells are formed. The disease develops when blood cells produced in the bone marrow grow out of control. Read more…

2. What is CLL?
While there are many places on the internet where this question is answered, you might want to begin with the eNewsletter, Focus On Chronic Lymphocytic Leukemia, published by the Leukemia and Lymphoma Society (be sure to register for it). For more on what you should know and what you should do, visit the LLS website on Chronic Lymyphocytic Leukemia.

3. What would be a good, comprehensive resource to start with?
The  Leukemia and Lymphoma Society has an excellent website with many good resources on CLL.

CLLguideIn particular, they have a free booklet, The CLL Guide: Information for Patients and Caregivers, which you may read online and save or print a copy. It probably is one of the best comprehensive resources on CLL with which to begin learning about all things CLL.

……….

..4. What questions should I be asking my doctor?

The Cancer It’s Personal website has A Discussion Guide To Use When Talking With Your Doctor which you and your doctors might find very useful.

Also, check the list of question topics and focused questions, What To Ask, on the LLS website.

5. What can complementary and alternative medicine offer CLL patients?

In additional to conventional cancer care, complementary and alternative medicine (CAM) offers therapies and approaches for the cancer patients. Along this line, the University of Minnesota has a resource, the Circle of Health, which you may find quite useful.

….

6. What is available to manage my health information and advice?

OncoPilot

The Abramson Cancer Center of the University of Pennsylvania, has a website, OncoLink. On it they offer advise on keeping records–documenting your cancer journey–and links to a set of useful PDF documents. → More…

7. How can we use the internet to support patient and caregivers?

The Leukemia and Lymphoma Society has a resource, CarePages, for easily creating, maintaining, and using a personal website–an online support community for the cancer patient and caregivers. Access CarePages  via the gotCLL Help drop-down menu.

8. What financial assistance is available for insurance co-pays?

The  Leukemia and Lymphoma Society has a Co-Pay Assistance Program  for those with family incomes at or below 500% of the national poverty level. Other sources of co-pay assistance may also be available for CLL patients. Also, check the Sources of Financial Assistance – Fact Sheet.

Enough for Starters

If you have examined these resources on this Basic path, you might be ready to drill down a bit deeper.  Return to HelpGuide Options and select another path to explore.

Feedback

More questions and links to related resources will be added as the website is developed and suggestions are submitted. Please submit your comments, questions, and suggestions, here.

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